#BoneMatters online information events 

A discussion between ROS specialist nurse Deborah and Dr Sunil Nedungayil, a GP with a specialist interest in osteoporosis, about treatments for prostate cancer that can weaken bones and increase the risk of fractures. Some medications and surgical options to treat prostate cancer in men are a risk factor for osteoporosis and fractures because they reduce the level of the testosterone hormone in the body. Men are encouraged to:

1. Discuss their risks with their doctor, 2. Understand when a bone health assessment is useful, 3. Get to know the drug treatment and positive lifestyle options available to improve their bone health.

Sign up to get notified by email when the latest sessions are available.

We want to learn more about how men prefer to receive support for osteoporosis, especially through peer support and health information. If you’re a man who is living with osteoporosis, we’d be very grateful if you have 5 minutes to complete this survey.

• Osteoporosis & Men Interview Bone Matters
• Risk factors for osteoporosis, scans and tests involved, and the drug treatments 

Prostate Cancer UK: https://prostatecanceruk.org/

In this session, specialist nurses Julia and Sarah explain what it means if you have been told you have osteoporosis and what the future holds. They look at the changes happening inside bones and how a diagnosis of osteoporosis can have different meanings.  They dispel myths and misunderstandings and help you understand what your diagnosis really means for you.

• General information about osteoporosis and diagnosis: - 
• Bone Density factsheet 
• What you need to know about scans and tests for your bones  
• DEXA & other osteoporosis scans with consultant radiographer Jill Griffin 

In this session, we explore osteoporosis and fractures in younger adults with Professor Jennie Walsh an Honorary Consultant Physician. Prof. Jennie has a particular interest in young people with low bone density and with a range of other rare bone diseases, she explains the diagnosis of osteoporosis in young people, the importance of a referral to a specialist before drug treatments are prescribed and managing the underlying condition.

In this next Bone Matters session, Dr. Stephen Tuck explains how men are affected by osteoporosis and fractures. We also hear a personal story from Nic Vine to help raise awareness of the impact on men. For more information: Check you risk,  Support in your area

In a nod to Rare Disease Day, our Clinical Advisor, Sarah Leyland, was joined by Professor Stuart Ralston, Chair of Rheumatology at Edinburgh University, and a patient with this rare condition. Read more about pregnancy-associated osteoporosis.

Phone and video appointments have remained commonplace since lockdown, although some of us might find them challenging, it is often more convenient, saves your time and money. In this session, Julie and Kirsty help you prepare for these phone and video appointments.

This session aims to help people living with osteoporosis, with or without fractures to feel able to manage the emotional impact of their condition. There are many emotions you tell us about, including fear, anxiety, many other feelings. We aim to offer some practical and immediate tips and tools if you're feeling in distress right now. Sarah and Niki are joined by therapist Ezra Hewing from Suffolk Mind and Lore Wolfson gives us an insight into her personal story.

For more information and support:

• Samaritans 116 123 
• MIND
• Spinal fractures film
  
• Relationships & Intimacy Bone Matters
• Managing persistent pain
• NHS

In this #BoneMatters recorded discussion with Professor Neil Gittoes, we explore the different risk factors for osteoporosis and broken bones, and why you need to know. We really value your feedback and are keen to hear how you found the session,  to let us know, please take a moment to complete our short survey

For more information, visit our Causes section and Bone health for all. For people who haven’t had any bone health assessment or drug treatments do use our Risk Checker to identify your own risk factors and ways to improve your bone health.

Bone Matters Extra: Your questions answered on Risk factors for osteoporosis

In this #BoneMatters extra session, specialist osteoporosis nurses Sarah Leyland and Julia Thompson answer questions submitted by our listeners further to Professor Gittoes session earlier in the week. We really value your feedback and are keen to hear how you found the session, to let us know, please take a moment to complete our short survey

For more information, visit our Causes section and Bone health for all. For people who haven’t had any bone health assessment or drug treatments do use our Risk Checker to identify your own risk factors and ways to improve your bone health.

Prof Stuart Ralston discusses the role of family history and genetics in increasing the risk of osteoporosis and fractures.

A discussion between ROS specialist nurse Deborah and Dr Sunil Nedungayil, a GP with a specialist interest in osteoporosis, about treatments for prostate cancer that can weaken bones and increase the risk of fractures. Some medications and surgical options to treat prostate cancer in men are a risk factor for osteoporosis and fractures because they reduce the level of the testosterone hormone in the body. Men are encouraged to:

1. Discuss their risks with their doctor, 2. Understand when a bone health assessment is useful, 3. Get to know the drug treatment and positive lifestyle options available to improve their bone health.

Sign up to get notified by email when the latest sessions are available.

We want to learn more about how men prefer to receive support for osteoporosis, especially through peer support and health information. If you’re a man who is living with osteoporosis, we’d be very grateful if you have 5 minutes to complete this survey.

• Osteoporosis & Men Interview Bone Matters
• Risk factors for osteoporosis, scans and tests involved, and the drug treatments 

Prostate Cancer UK: https://prostatecanceruk.org/

In this simple bitesize session, consultant radiographer Jill Griffin explains what a bone density scan (DXA) is and what the results mean for you.

Our April event with Jill Griffin - ROS Clinical Lead, Vertebral Fractures, focused on what bone density scanning (DXA) is, what your scan results might mean, and other scans that might be used.  Learn more about how your doctor builds a picture of your bone health in our information on scans and fracture risk assessments.

Hear all about the main drug treatments for osteoporosis in this #BoneMatters webinar, in which Dr Nicola Peel, Dr Zoe Paskins and Prof. David Armstrong give detailed information to help you make informed decisions about your medicine. To find out more about possible treatment options, visit our information on osteoporosis drug treatments.

In this session, Consultant Endocrinologist Dr. Zaki Hassan-Smith discusses how long osteoporosis drugs can be used for, and what happens after you stop taking them.

We hear from Dr. Alison Black to understand the possible side effects of osteoporosis medications, we get the facts and the hear about the hints and tips she gives her patients.

• Osteoporosis Drug Treatments
• Possible health risks of osteoporosis medications
• Medication Support Bone Matters

Dr Nicola Peel and Prof. David Armstrong explore how HRT can be used as an osteoporosis drug treatment to strengthen bones.

In this #BoneMatters extra session we discuss the practical issues of taking HRT with Kathy Abernethy, a highly experienced Menopause Specialist Nurse. We recommend you listen to our session on Hormone Replacement Therapy (HRT) with Dr Nicky Peel & Prof. David Armstrong session from January first, which gives a boarder discussion of HRT. For more information HRT and Bone health fact sheet Click here

In this session, Volunteer Hilary shares her alendronate (alendronic acid) routine and some of the things she wished she’d known when starting alendronate.  She discusses how to make the most of her drug treatment, how to reduce side effects, and what to do if she forgets to take her tablet. We hope you enjoy this session, please like and comment below. 

We read so much in the media about what’s good for our bones, it can be confusing. Professor Sue Lanham-New is an expert in nutrition and in this session explains what the latest research tells us about nutrition and bone health.

Visit our Nutrition for bones page on our web and the NHS Eat Well Guide .

We have the following factsheets on nutrition:

Calcium supplements and tests

Vitamin D supplements and tests

Further food facts and bones

• 01:51:Does what we eat and drink really make a difference to our bone health and our risk of breaking bones?
• 04:27:What is this acidic diet and whether it is a problem for our bones?
• 09:38:What is gut microbiome and does it make a difference to our bones?
• 16:18:Vitamin D
• 23:30:Salt
• 25:00:Magnesium
• 27:05:Vitamin A
• 29:51:Coffee
• 32:02:Tea
• 32:39:Fasting
• 34:03:B Vitamins
• 34:55:Protein
• 37:27:Plant-based diets

In this online Q+A, hear from experts about how eating and drinking the right things can support your bone health at every stage of your life.

Find out more about a bone-healthy diet.

In this online Q+A, hear from experts about how eating and drinking the right things can support your bone health at every stage of your life.

Find out more about a bone-healthy diet.

In our latest #bonematters session, Sarah Leyland Specialist Nurse and Clinical Adviser at the ROS talks with exercise experts Katherine Brooke Wavell and Richard Blagrove about the new ROS exercise for bones films that they produced together.  This conversation gives you details about what that the films are about, how and why they developed the three stage plan and what specific exercises help bone strength.  They also answer questions posed by ROS members.   The new exercise films.   Exercise for bone health  Exercise for osteoporosis

In this session, Bex Townley leads a 25 minute gentle ‘movement’ exercise. We lose muscle and bone strength as part of the aging process but sitting less and moving more helps to reduce this decline. There is always something you can do by moving more, in this film Bex helps build confidence and understanding so you can make a start with exercise.

• Later Life training
• Make Movement your Mission
• About exercise and osteoporosis fact sheet
• Warm up and cool down films
• Exercise for balance and muscle strength film and fact sheet
• Getting started with exercise fact sheet

In this session, we’ll look at ways of reducing the risk of falls to maintaining bone health, independence, and quality of life. Nurse Manager Julia is joined by Professor Tahir Masud, consultant physician at Nottingham University Hospitals NHS Trust, Professor Dawn Skelton, Glasgow Caledonian University and Julie Whitney a consultant practitioner in gerontology in King’s College Hospital.

Finding a specific falls exercise programme: You can find your local falls service by typing 'falls service Bolton" (and changing to your nearest Town) into Google or asking your GP. Some areas also have specific exercise groups in the community which aim to help people stay strong and steady. Tai Chi has a strong evidence base for preventing falls but if you are worried about maintaining your balance in a group environment then you should look for groups that are run by trained instructors that can prescribe and tailor your exercise programme to meet any ability levels and medical conditions. These are known as Otago Exercise Programme Leaders, or Postural Stability Instructors who run the FaME (Falls Management Exercise) Programme. Sometimes these classes are known as Stay Strong, Strong and Steady, Steady Steps. 

• NHS falls
• CSP video of checking your falls risk
• NHS CBT services
• Falls and balance fact sheet and video
• Getting up from the floor fact sheet and video
• Falls

Hear from leading experts, Professor Emma Clark, Professor Terence O’Neill and Professor Karen Barker, to learn how to manage the impact of painful broken bones on your life.

We have lots of information that may help if you’re living with pain or other symptoms caused by broken bones.

In this session Osteoporosis Specialist Nurse's Niki and Viv discuss how to get the most from your pain-relieving medications to manage pain better after a broken bone, and common fears or worries that some people have around taking pain medicines. 

Nurse Specialist Kirsty is joined by Jacqueline Rheumatology Occupational Therapist to help explain what equipment may be useful and why, and our lead volunteer advocate Philippa shares her hints and tips from her lived experience with fractures. For more information please see our Daily living after fractures and Getting out and about factsheet, Everyday life webpage and Bone Matters: Living well with fractures session. 

In this session, we’ll look at ways of reducing the risk of falls to maintaining bone health, independence, and quality of life. Nurse Manager Julia is joined by Professor Tahir Masud, consultant physician at Nottingham University Hospitals NHS Trust, Professor Dawn Skelton, Glasgow Caledonian University and Julie Whitney a consultant practitioner in gerontology in King’s College Hospital.

Finding a specific falls exercise programme: You can find your local falls service by typing 'falls service Bolton" (and changing to your nearest Town) into Google or asking your GP. Some areas also have specific exercise groups in the community which aim to help people stay strong and steady. Tai Chi has a strong evidence base for preventing falls but if you are worried about maintaining your balance in a group environment then you should look for groups that are run by trained instructors that can prescribe and tailor your exercise programme to meet any ability levels and medical conditions. These are known as Otago Exercise Programme Leaders, or Postural Stability Instructors who run the FaME (Falls Management Exercise) Programme. Sometimes these classes are known as Stay Strong, Strong and Steady, Steady Steps. 

• NHS falls
• CSP video of checking your falls risk
• NHS CBT services
• Falls and balance fact sheet and video
• Getting up from the floor fact sheet and video
• Falls

In this #BoneMatters extra session, Rheumatologist physiotherapist Sarah Legg answers your questions on exercising after spinal fractures,  including advice on

warm up and cool down exercise, exercising safely, exercise for back pain after spinal fractures, exercise for posture, exercise for muscle and bone strength, moving and lifting, bending forward                    

 Check out our new suit of exercise videos here

 Receive an email when these sessions come out here

#backpain #osteoporosis #exercise #physiotherapist #rheumatology #bonestrength #fractures

In this recorded discussion, Professor Celia Gregson and physiotherapist Dr Katie Sheehan talk to us about how to recover well after a broken hip.

To find out more:

• Hip fracture leaflet
• Hip Fracture: A guide for family carers
• Living with Fractures
• Keeping steady (exercise)
• https://www.ppitroop.co.uk/
• The REDUCE study toolkit

For more information

• Hip fracture leaflet 
• Hip fracture: A guide for family carers 
• This is me
• Carers UK 

In this #BoneMatters session we’ve teamed up with the benefits experts at T2Us, David Samson discusses the financial help available for people living with osteoporosis. We know many of you will be worried about the rising cost of living, especially over the winter months and this session explores how welfare benefits can support.

Up next from the Bone Matters series is an audio discussion on relationships and intimacy. Tune in to hear Sarah Leyland, Specialist Nurse and Clinical Advisor at the Royal Osteoporosis Society (ROS) in conversation with Denise Knowles, Psychosexual and Relationship Therapist. They explore how living with osteoporosis and broken bones can affect personal relationships, how to access help, and some of the positive ways issues can be resolved.Please note, intimate discussions involved.

 We’ve based the topic of this discussion on the feedback and questions we’ve received from you. To help shape the rest of the Bone Matters series, please complete our short survey and have your say: https://www.surveymonkey.co.uk/r/BoneMattersRI

It’s natural to be concerned about how osteoporosis is going to affect your daily life. But having osteoporosis doesn't always mean avoiding activities and interests that are important to you and your loved ones. Read our information on living with osteoporosis.